John Joseph Huber
Posted on August 12th, 2005 in General
Because of the findings during the ultrasound, the doctors ordered more tests. After an amniocentisis was performed, more bad news was given. John had an extra half of Chromosome 1. What did this mean? It meant that John would be severely deformed when born, if he was born alive, if he made it to full term at all. Again, the doctors gave the worst prognosis and offered the Hubers the option of “terminating” John. Once again, they declined.
Thank God for strong people of conviction and faith. People who know right from wrong. People who will go swiftly into battle knowing what the oppostion has in store for them. People who know that our God is a big, just and loving God. I think just about any family would have thrown in the towel after reports such as these. No one wants to hear that their next child, their next baby, will be born deformed if the child is even born at all. But some folks trust that God will work miracles. The Hubers are some of those folks.
Letting go and Letting God
The testimony of the Hubers really starts when they found out the first time that John might have problems. It continued on through the second diagnosis and subsequent doctor visits and hour-long appointments with specialist and other physicians. It even carried on to February 9, 2005 when the world welcomed a living, breathing John Joseph Huber into the world. The doctors said it would probably not happen given the nature of his illnesses. But there were a lot of people that thought otherwise.
Was everything peaches and cream when John was born? No. Not by any stretch of the imagination. John was born severely deformed. He was blind. He was deaf. His chin had not finished forming so his face was a little sunk. And the part of the brain that controls swallowing, gagging and throwing up was completely non-existent. John was born into a struggle. But praise God he was born… and boy, was he some kind of beautiful! Seeing a living, breathing defiance to surrender gives me the goosebumps. Thinking what that boy was going to go through, and what his family would go through, made me a bit sad at first. But as he persevered and the family became even tighter, it was apparent that baby John had made an impact on this family.
Yes, he was beautiful. He looked a lot like his closest oldest brother. He was small and he was awesome. Friends and family came from all over the place to see this kid. The Huber household was inundated. There were doctors and aids and hospice workers as well. This kid needed help and the Hubers needed help as well.
For 45 days baby John lived among their family. He became a part of the family. His brothers and sister fell in love with him as did my entire family and everyone else that laid eyes on him. He was awesome. Of course, given the nature of his medical condition and the severity of some of the disabilities, baby John lost his battle with the awful disease he had and went on to be with the Lord on March 26, 2005.
This was a difficult experience for everyone close the Hubers. My wife was severely affected by John’s death. My kids had a little bit of a hard time understanding what happened. And eventhough they had just lost a baby, an event that few have experienced and even fewer can openly relate to, the Hubers did have a miracle for those 45 days. So does the Huber family testimony end here, on a high but sad note? Not even close.
September 27th, 2005 at 6:24 am
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